Cystic Fibrosis

Cystic Fibrosis Organisation Website

The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited for everyone affected by cystic fibrosis. There is information around living with CF split into different stages of life, information about what CF is and around the work that they do.

GOSH - Cystic Fibrosis Website

This website provides information from Great Ormond Street Hospital is about cystic fibrosis (CF) with answers to the most common questions asked about the condition.

Caring for a Child with CF Website

Learning that your child has cystic fibrosis can be overwhelming, but this website gives guidance on what to expect and how to cope when caring for a child with CF.

Kids Health CF Recipes Website

Check out some delicious high-calorie recipes that are especially for kids with cystic-fibrosis (CF) who may need additional calories to meet their nutritional needs.

CF - Working with your Child's School Website

Find the tools and resources you need to help your child achieve academic success while maintaining his or her health.

CF Free Downloadable Pack - Primary School Age

This pack is designed to outline some of the concerns or challenges that may come up when your child starts pre-school or primary school, including infection control, diet management and your relationship with the school. The parents in this pack all have their own approaches to these issues, and no two experiences will be the same - as you know, your child is completely unique and over time you'll work out the best way to help the school meet their specific needs.

CF Free Downloadable Pack - Secondary School Age

The secondary school pack is comprised of useful and interesting information on developing an individual health care plan, managing treatment and infection control, dealing with absence, and a helpful checklist, as well as an ‘Ask the psychologists’ section. This pack also touches upon the transition from primary to secondary education and was created with the help of parents, teachers and young people. The pack includes an in-depth guide for parents, a factsheet for schools and a magazine.

A powerful and eye opening animation that uses the first-person testimony of Jasper a boy that lives with cystic fibrosis. Jasper explains what his condition is, the treatment he receives and the emotional challenges he faces. Using Jasper’s real first person testimony creates an intimate and direct tone that will help children to empathise with people’s differences. Jasper’s circumstances are easily relatable to children; he talks about school, school trips, friends, his hobbies and explains the complications that cystic fibrosis brings to these situations.