Long Term Conditions
Cancer
MacMillan Cancer Support
Helpline = 08088080000
Physical, emotional and financial information/support to help you live life as fully as you can when affected by cancer.
Diabetes
Online Diabetes Community
Offering their own support and first-hand knowledge. Includes information guides, financial guidance, food/ nutrition information including recipes, and the diabetes forum (most actively used social media forum for people with diabetes).
Diabetes Food Hub
Finding recipes that fit a diabetes eating plan can be a challenge. Here is a digital cooking and recipe destination from the American Diabetes Association that can help with this.
Respiratory Conditions
British Lung Foundation
Helpline = 03000 030 555
UK charity looking after the nation's lungs. Our helpline, support groups, web community and easy-to-understand information offer vital hope and support.
Cardiac Conditions
British Heart Foundation
Charity providing information and support, including booklets and guides, around different heart conditions. Information on risk factors, support available, how the heart works, tests and treatments.
Chronic Fatigue/ ME
Action for ME
A charity providing information about ME (support, management approaches, welfare benefits, social care, carer support etc.) for both patients and families/ loved ones.
Chronic Fatigue Syndrome Self Help Guide
A brief self-help guide and an attempt to explain the process of recovery, based on an approach from the National ME Centre.
Irritable Bowel Syndrome
Guts Charity
A charity trying to get digestive disorders better understood, better treated, and that everyone who lives with one gets the support they need. Lots of useful information leaflets.
IBS Network
UK’s national charity for IBS, offering information, advice and support to patients with IBS and working with health professionals to facilitate self-management.
Inflammatory Bowel Disease
Crohns and Colitis
Provide confidential support services which can give practical information and support for those newly diagnosed, or who have lived with IBD for some time, friend/relative/partner/ carer, or just wanting to know more.
Arthritis
Versus Arthritis
Charity dedicated to supporting people with arthritis. Online resources around different types of arthritis, treatments, and exercises to manage pain in different areas.
Helpline which you can call for free for information/advice about arthritis tailored to you, Monday – Friday 9am-8pm. No: 0800 5200 520
Fibromyalgia
FMA UK
A charity providing information on fibromyalgia including its symptoms, diagnosis, causes, current treatments/ management strategies.
They also have a national helpline (Monday- Friday 10am-4pm) staffed by volunteers who tend to have fibromyalgia themselves – 0300 999 3333
Versus Arthritis - Fibromyalgia
A great information source around fibromyalgia, covering symptoms, causes, diagnosis, what the future holds, different treatment types, current research, and a patient story.
There is also a more detailed PDF version from Arthritis Research UK which covers similar topics.
NHS Self- Help Guide
A brief self-help guide to recovery for fibromyalgia, in particular the fatigue element.
See resources on pain management, sleep hygiene and fatigue also.